Pain Awareness Month

Pain Awareness Month | Burning Nights CRPS
Photo: Burning Nights

I’ve been dealing with chronic pain for over 15 years now. I am glad this topic is starting to gain light. For some years, physicians would diagnose patients with mental disorders instead of conducting an in-depth investigation of the underline problem.

Is there any light in this tunnel?

Life has been a roller coaster for the last two and a half years of my life. There is a saying be careful what you ask for you just may get it. I use to wonder what people meant by they had to reconstruct their life after getting sick. I have experienced first hand what its like to have your life changed in a blink of mine eye. Since March of 2016 my life has changed so dramatically I haven’t been able to keep up with it myself. I used to think the light was going to be shining and the end of this dark tunnel was approaching. To my surprise life had another alternative plan for me. I am trying to adjust to the change and accept the new issues that have arisen.

As I look back on my life thus far, it has been a journey for me. Felt I was accomplishing my goals but, now I see this wasn’t the intended plan for me. Of course, I don’t regret anything I have done thus far it is a learning curve for me. Through the years I was able to obtain three college degrees and was able to start working in my desired career paths. We raised four children, made sure they finished school and chosen the path they wanted to pursue. I am very proud of what we had accomplished thus far. We still have two children left to raise. One will be 18 next year and our baby girl have seven more years before she is ready to be a young lady.

During the last two years, I’ve learned my education and experiences has no bearing right now in my life. I had to come up with a new plan of action which would’ve never cross my mind. Every day is faced with new obstacles, challenges, and defeat, but through it, all I can do is fight to the best of my ability. Now I understand you have to create your own light. Faith and hope are the two things I really can rely on to see me through this journey. My light is shining around me in this tunnel I just had to open my mind and eyes to see it.

Related image

Dear John letter…Take Care

I let pain control my life for the last two and a half years. I am so done with nerve damage, Fibromyalgia, and chronic pain. Not to mention the other mental health problems you begin to develop over time. I am done with my red seat walker, my blue speed cane, and finally my trusty AFO leg piece. It has been a long journey for us throughout the years. You all have been there for me when I needed you all the most. I am sorry. I have never been the type of person to overstay my welcome. I don’t want to continue this relationship any longer. I believe it is time for us to go our separate ways. I don’t want to sound like I am picking between the three of you, but I still need one of you to help me a little while longer, please. I will discuss this matter with the one I need.

Now I have other matters to deal with. Pain, when are you leaving you have overstayed your welcome to the point I can’t stand you. You have caused me so much grief in past and yet you have not let up your pressure. You have taken away my freedom, my security, my self-confidence, and my self-esteem. I can’t believe I allow you to belittle me the way you have. You are my weakness. The relationship has been very abusive and mentally draining. You made sure I was aware you were around every single moment of the day and night. You are very jealous of me being happy and productive. To top things off you had invited over friends to help make me miserable.

I have given you too much of my precious time. Now it is time for you to go find another hobby to focus all your time and energy on. Right now, I want you to take your friends and leave me alone. There is no room for negotiations just get your bags and start stepping out the door. Please, no need to look back to see if I am looking, because I already started a departure party on your behalf.

P.S

XOXO🙋‍♀️🙋‍♀️🚫🚫🚫

Living everyday with chronic pain

This is my first time so please bear with me.  Here is my story the short version. I was born with a fatty tumor in my lower back. It looked like I had a little monkey tail. When I was two years old they surgical cut it down.  The site was an ugly puff scar. Somehow I remember them performing the surgery and seeing them cutting the tumor. I don’t recall having any problems as I was growing up. Fast forward thirty plus years. Not willing to reveal my age just yet.  The last 10 years has been nothing but problems with my lower back. One day I experience being paralyzed from the waist down only last a couple of hours. We went to several doctors and to no avail. Finally, a chiropractor decided to do an MRI and discover the tumor was back, but it was benign.  I was diagnosed with fibromyalgia as the cause of all my pain. Due to all the medication, I was taking the excessive weight gain helped play a part in my pain.

The last decade has been very painfully for me. Recently I started experiencing new symptoms. In 2014, things started getting weird for me. I would get out the bed and just fall to the floor. As soon as I would take the first step off of the bed it was like my foot would never touch the ground.  My husband thought I was falling on purpose. One day my right leg was hurt really bad and couldn’t move. The next time I was getting up from the couch and just fell back. This happened more frequently on daily basis. I started wetting myself numerous times during the day.

I was diagnosed with having a tumor attached to my spinal cord. The tumor was pulling my spinal cord down to my tailbone.  My symptoms were getting worse. I needed to have surgery. A detethering of the spinal cord would release the tumor.   I had surgery with an outcome of partially paralyzed on the lower left leg. I have full control of three toes. The rest of my foot I am not able to feel. The knee can’t tell when it’s getting weak and there is no feeling between the knee and ankle. I  am a major fall risk. My ankles hurt all the time. I am having a difficult time with keeping a job. Some days the pain is bad I just want to sleep all day. There are days I just sleep in.

Now I am learning the weather plays a key role in my pain. I have been told there is no medication they can prescribe to me. I don’t sleep well at night. My bedtime is normally around 3 am. I haven’t  mentioned, I have to take muscle relaxers to go to sleep every night.