Today, started off on the wrong foot :(. My leg is stiff and ankle hurts really bad. On the good note, I have taken a shower without my shower chair or assistance. I was scared to be in the shower alone for more than five minutes. Sad thing was if I fell there was no one home to help me. I did come out the bathroom with a lot of pain, but what can I do. I was able to function ok for a couple of hours and then it was shut down time. No pain medicine is driving me crazy. My pain level was at 18 on the scale of 1-10.
Welcome to another week and to some more great blog posts! It has been a busy week in our household and some of you might have seen my post about moving one son home and the other off to university. Funny how Duncan and I have both woken up with splitting headaches this morning…..the only […]
This is my first time so please bear with me. Here is my story the short version. I was born with a fatty tumor in my lower back. It looked like I had a little monkey tail. When I was two years old they surgical cut it down. The site was an ugly puff scar. Somehow I remember them performing the surgery and seeing them cutting the tumor. I don’t recall having any problems as I was growing up. Fast forward thirty plus years. Not willing to reveal my age just yet. The last 10 years has been nothing but problems with my lower back. One day I experience being paralyzed from the waist down only last a couple of hours. We went to several doctors and to no avail. Finally, a chiropractor decided to do an MRI and discover the tumor was back, but it was benign. I was diagnosed with fibromyalgia as the cause of all my pain. Due to all the medication, I was taking the excessive weight gain helped play a part in my pain.
The last decade has been very painfully for me. Recently I started experiencing new symptoms. In 2014, things started getting weird for me. I would get out the bed and just fall to the floor. As soon as I would take the first step off of the bed it was like my foot would never touch the ground. My husband thought I was falling on purpose. One day my right leg was hurt really bad and couldn’t move. The next time I was getting up from the couch and just fell back. This happened more frequently on daily basis. I started wetting myself numerous times during the day.
I was diagnosed with having a tumor attached to my spinal cord. The tumor was pulling my spinal cord down to my tailbone. My symptoms were getting worse. I needed to have surgery. A detethering of the spinal cord would release the tumor. I had surgery with an outcome of partially paralyzed on the lower left leg. I have full control of three toes. The rest of my foot I am not able to feel. The knee can’t tell when it’s getting weak and there is no feeling between the knee and ankle. I am a major fall risk. My ankles hurt all the time. I am having a difficult time with keeping a job. Some days the pain is bad I just want to sleep all day. There are days I just sleep in.
Now I am learning the weather plays a key role in my pain. I have been told there is no medication they can prescribe to me. I don’t sleep well at night. My bedtime is normally around 3 am. I haven’t mentioned, I have to take muscle relaxers to go to sleep every night.
This is my first publicized story. I hope this will help other people who are dealing with the same issues. Maybe we can open up a dialogue. Bare with me my writing can be a little discombobulated. I do suffer from dyslexia. Please don’t let that turn you away….