Living everyday with chronic pain

This is my first time so please bear with me.  Here is my story the short version. I was born with a fatty tumor in my lower back. It looked like I had a little monkey tail. When I was two years old they surgical cut it down.  The site was an ugly puff scar. Somehow I remember them performing the surgery and seeing them cutting the tumor. I don’t recall having any problems as I was growing up. Fast forward thirty plus years. Not willing to reveal my age just yet.  The last 10 years has been nothing but problems with my lower back. One day I experience being paralyzed from the waist down only last a couple of hours. We went to several doctors and to no avail. Finally, a chiropractor decided to do an MRI and discover the tumor was back, but it was benign.  I was diagnosed with fibromyalgia as the cause of all my pain. Due to all the medication, I was taking the excessive weight gain helped play a part in my pain.

The last decade has been very painfully for me. Recently I started experiencing new symptoms. In 2014, things started getting weird for me. I would get out the bed and just fall to the floor. As soon as I would take the first step off of the bed it was like my foot would never touch the ground.  My husband thought I was falling on purpose. One day my right leg was hurt really bad and couldn’t move. The next time I was getting up from the couch and just fell back. This happened more frequently on daily basis. I started wetting myself numerous times during the day.

I was diagnosed with having a tumor attached to my spinal cord. The tumor was pulling my spinal cord down to my tailbone.  My symptoms were getting worse. I needed to have surgery. A detethering of the spinal cord would release the tumor.   I had surgery with an outcome of partially paralyzed on the lower left leg. I have full control of three toes. The rest of my foot I am not able to feel. The knee can’t tell when it’s getting weak and there is no feeling between the knee and ankle. I  am a major fall risk. My ankles hurt all the time. I am having a difficult time with keeping a job. Some days the pain is bad I just want to sleep all day. There are days I just sleep in.

Now I am learning the weather plays a key role in my pain. I have been told there is no medication they can prescribe to me. I don’t sleep well at night. My bedtime is normally around 3 am. I haven’t  mentioned, I have to take muscle relaxers to go to sleep every night.

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Author: Pain Bug

I am 30+ years old married with 6 children. They are all grown except two and my youngest one reminds us every day she is the baby. We love to travel the east coast. We soon hope to travel the west coast of the U.S. I am very spontaneous spur of the moment person.

2 thoughts on “Living everyday with chronic pain”

  1. It’s sad because people judge other people without really knowing how it is for us every day passing judgement on us not knowing the horror we endure just trying to do wat is considered ur way of life to now being lucky if you dnt have pain just to sweep or to get in the shower April of 2015-2016 I was diagnosed with lumbar disc degeneration something with my L3-L4 Vertabrae in my spine that pain alone is horrible then on top of all that I just found out that I have Rheumatoid Arthritis ugh my god these combined levels of pain to my hands knees arms legs and feet I can’t begin to tell you the affect it has on my life not able to walk long distances always need my cane I’m too young for this but the more I research I have to decipher the two symptoms of pain back or arthritis the weather does play a very big part in it as well as wat your diet it is

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    1. The pain we endure silent epidemic symptom. We suffer silently while trying to maintain some type of lifestyle. There are days I wonder if this is going to be my new norm for the rest of my life.

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